Concert for a Cure

We are so excited to announce our CONCERT FOR A CURE to benefit Cure LGMD2i!

Join us on Saturday, September 27th as we celebrate life and raise funds for a cure for Limb Girdle Muscular Dystrophy Type 2i. Tickets are limited, so make sure to get yours now! There are many other ways to get involved please consider sponsoring, donating a prize for auction, or help setting up at the event. I am so grateful for your support, please reach out if you’d like to discuss how to get involved, email me at support@laceywoods.com. If you can’t make it and would like to make a donation please go online to curelgmd2i.com and click donate or mail a check to: CureLGMD2i 590 Centerville Rd #340 Lancaster, PA 17601.

Limb Girdle Muscular Dystrophy Type 2i (LGMD2i) is a progressively debilitating disease caused by weakness and muscle wasting that starts in the shoulder and hip areas and works its way outward. Over time, this excessive muscle wasting can result in cardiovascular, respiratory and overall physical complications. Those who have known me for years have watched my progressive muscle weakness as I have gone from running and walking to having to use a wheelchair full-time, use breathing equipment, as well as take heart medications. LGMD2i does not discriminate and will continue to progress until we find a cure.

We will be using your donation to continue funding advocacy programs, drug development and cutting edge research programs for Limb Girdle Muscular Dystrophy Type 2i(R9). To date Cure LGMD2i has provided over $1,400,000 in support of increasing awareness and scientific research for LGMD2i. We remain determined to secure a future for so many affected by this rare and progressive disease.

For more information about me and my journey with LGMD2i listen to my interview: https://open.spotify.com/episode/7fH3lGWS0mqIWItonvKybb

“Lacey joins David Rintell, Head of Patient Advocacy at BridgeBio to talk about how LGMD2i/R9 has impacted her life. When Lacey was 16, she was diagnosed with a progressive neuromuscular disease, known as LGMD. The only question she had for the doctor was whether she could one day become a mother. Without additional explanation, she was told that LGMD2i would keep her from having children. For years, Lacey lived in denial. Despite the limitations of her disease, she charged ahead with her life. She runs a business with her husband. She is a wife, mother, and foster parent. And in 2007, when she received the diagnosis of LGMD type 2i, she became an advocate for her LGMD2i community when she formed an LGMD2i Facebook group so that people with LGMD2i could connect and share information.“

My journey on becoming a mother having the diagnosis of LGMD2i:
https://patientworthy.com/2023/06/14/motherhood-lgmd2i-journey-of-determination/

Listen to more of Savanna’s music at: www.Savannawoodsmusic.com

A BIG THANK YOU to our Sponsors:

Gold:

Silver:

Bronze: The UPS Store Stanwood

We are a 501(c)(3) tax-exempt public charity and as such, your monetary contribution is fully tax-deductible. Our Federal Tax ID number is 80-0680447.